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View Full Version : Endocrinologists… A different perspective (help needed)



Stephanie Heplby
10-05-2009, 12:13 PM
There are two elements to this post, but they are related… First, I have a question, then an associated set of observations.

The question is something you have all seen before, and I ask in hopes of hearing the latest information for my area:
Does anyone know any good endocrinologists in the Washington, DC area? Naturally, I would like to find one with experience in the MtF arena.

Just as naturally, you would assume that this is for me, but this question is actually for my wife.

Puzzled, you might be, yes? (Not sure where Yoda came from.)

One might ask several questions, including (but not limited to):
Is your wife a genetic female?
If so, why would you want an endocrinologist with MtF experience?
Are you just trying to get information for yourself without actually making your own appointment?

The answers are:
Yes.
It’s complicated.
No.

A little explanation is clearly in order, which will lead right to my set of observations.

My wife is a lovely genetic female, who has been diagnosed with polycystic ovarian syndrome (PCOS). For those unaware, PCOS is, in many ways, a problem of the endocrine system. PCOS often results in infertility, weight gain, insulin intolerance (with obvious relation to weight gain), and hirsutism, among others.

We have been to many doctors across the mid-Atlantic region of the Eastern United States. These doctors range from cutting-edge to new-age to tried-and-true types. The two best doctors we have seen are unavailable to us – one died years ago of sudden cancer onset, while the other is listed as a “reproductive endocrinologist”, hence insurance will not pay and we cannot afford him. (And yet there are people who say that the U.S. health care system is just fine… Go figure.)

So why am I looking around again? I am spurred to look, based on my realization that we are all transgendered (or perhaps “intergendered” would be better in this case).

My wife is a genetic female and sees herself as female, yet nature has played her a horrible trick. Her body is staging a rebellion as she ages, bringing forth more masculine traits. She is, in many ways trying to overcome her own biology so that she can live as the woman she feels she really is (as are other wonderful women).

I very much want to help her feel like the woman I see in her. Perhaps an endocrinologist who is open-minded enough to deal with transgender issues would be more appropriate. Perhaps an endocrinologist with MtF experience would have cognitive approaches that would solve the problems at hand.

In summary, I offer this story for two reasons. The first reason is just to find some suggestions for endocrinologists in the Washington, DC area. The second is more profound – society needs to recognize how similar our issues really are. Trying to overcome the wounds inflicted by nature is not just the realm of a genetic male trying to transition. Genetic women and men suffer daily trying to be the person that society already thinks them to be.

I can tell you that, for my wife at least, the journey is no less hard.

Thanks for your help.

Stephenie
10-06-2009, 09:04 AM
My wife too had to deal with this. Any endocrinologist should be able to help her. They would not have to have any M2F experiance to be able to help. HRT for GGs is quite common. And will help alot with her problems.

luvSophia
10-06-2009, 06:03 PM
I don't know if you consider it the Washington area, but there is supposed to be at least one very good endo associated with the Fan Free Clinic in Richmond. And they run a very highly regarded gender clinic there. I know several girls who have used the clinic for their therapy and hormone treatments.

HollyWolly
10-18-2009, 12:39 PM
Wow, well what first comes to mind is just how much you love your wife. It's very obvious, and that's just a beautiful thing!

Also I think you're right that her own experience has made her better able to understand your own sense of body betraying mind. She really must feel that same sort of pain all of us have felt...and in that light I am sorry she must endure that pain. No one should have to go through that.

I wanted to add, too, that maybe therapy sessions with a psych experienced in MtF could be very beneficial for the both of you. You could attend together. Sharing your thoughts and feelings with each other through a mediator experienced in gender issues might bring you two closer and help her cope with the betrayal of body upon soul.

As far as finding an Endo goes, I used the websites below to find one in my area who does HRT for TS. I just called down the lost, and you have to be straightforward and to the point on the phone as it seems most Endo offices are very busy. I simply asked, "does your office do hormone therapy for transgendered patients?" No one gave me any trouble and some were very kind about it.

Here's ya go:

The Hormone Foundation: Find an Endocrinologist (http://www.hormone.org/findanendo/)

or

AACE Physician Finder (http://www.aace.com/resources/memsearch.php)

Good Luck!

carolinoakland
10-18-2009, 01:35 PM
and your wife wakes up everyday with her best friend next to her. Don't forget that. Carol

Karen564
10-18-2009, 10:29 PM
We have been to many doctors across the mid-Atlantic region of the Eastern United States. These doctors range from cutting-edge to new-age to tried-and-true types. The two best doctors we have seen are unavailable to us – one died years ago of sudden cancer onset, while the other is listed as a “reproductive endocrinologist”, hence insurance will not pay and we cannot afford him. (And yet there are people who say that the U.S. health care system is just fine… Go figure.)

So why am I looking around again? I am spurred to look, based on my realization that we are all transgendered (or perhaps “intergendered” would be better in this case).



I'm sorry to hear what your wife is going through, and wish you both the best of luck..
Sometimes because of the way some insurance plans work, you need to jump through many hoops to get what you really need in order for them to pay..It really sucks & inconvenience, but that is their way out to avoid paying..

Keep in mind I'm not a doctor or work for an health insurance co., but these are my thoughts..

1st though, her gynecologist/PCP should of been able to handle the hrt to some extent, & if it was more serious & beyond their capacity, they should of referred your wife to a competent endo specializing in women's hrt, but if the insurance co doesn't cover it, sounds they likely feel it's not an physical health related issue because shes past some age limit to be considered eligible for fertility treatments & they dont regard excessive hair growth an health issue.. but if your wife is diabetic, that's a whole different issue that should be covered with no questions asked though her PCP & should be addressed..

The only way I can think of around the hirsutism thing to get covered by insurance is if it's causing depression, which sounds like it is, you may need to look into some psychiatriatric care for her & let the psychologist refer an specialist for her own mental well being, not sure that will work in her case, so you may want to look into that as one possibility to get the insurance to pay for it..it may be stretching it a bit, but maybe worth looking into..

To be honest, sometimes one must resort to fighting with these insurance company's to get them to pay, I know of many that said the insurance wouldn't cover a treatment or specialist the 1st time, then fought them & won out in the end.. these insurance company's do push the limits on covering certain care, but not always willing to do an all out battle if it's going to cost them too much in the end anyways..

As far as finding an endo only specialising in mtf, yes that's doable, and if this is what it takes, then that's what it takes to get her help..

So dont think it's not a matter of so much finding one, but finding one that you can afford or have covered under your insurance plan..

But If I was her, I'd 1st be looking around for another PCP that can work with her & know how to deal with those insurance companys ..not all doctors are created equally..if your catching my drift, wink..

So much for our great heath care..right..

Again, good luck to you both, I really hope she can get some help in some way or another..
Your so great for trying to get her that help..
:hugs:

Stephanie-L
10-18-2009, 10:42 PM
Since PCOS is often linked to type II diabetes, an endocrinologist who specializes in diabetes and it's complications should be able to help your wife. My wife suffered from the beginings of PCOS some years ago. The two things that helped were her hysterectomy (for many reasons including the PCOS) and getting her diabetes under tight control. Since you do not mention your wife having diabetes I presume she doesn't. I would recommend watching closely for any possible signs of it though. The endocrine system is so closely interlinked that if one part of it is out of whack, others soon follow. Good luck and I hope you find a good Dr. for your wife.......Stephanie

raleighbelle
10-18-2009, 11:39 PM
She could actually see her family physician, gynecologist, or an endocrinologist for this. I don't really see the need for the MTF expertise, as this really is not that type of an issue from an endocrinology point of view. (You might want to see one for yourself though, for your MTF issues). It isn't really hormone replacement therapy that she needs, but spironolactone, and treatment of the related issues such as diabetes, which would most likely be treated with Metformin, even if she is not yet diabetic. Most important is weight loss, which will help her symptoms a lot (though I am not saying this is easy). I would be very careful with any doc who just wants to use dietary supplements and herbal remedies or alternative treatments for this, though some may be helpful in addition to the other things.