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NIKKITA
11-23-2006, 09:34 PM
A few years back now I was constantly in and out of hospital.Eventually I was told I had a rare form of kidney disease and because of this my heart was becoming enlarged. And so I was now at a hight risk of heart failure and kidney failure. Along with this realism I decided that should the worse happen and i had'nt told my mum about my true feelings I needed her to understand who I was. So I am thinking of writing a last will and testement, and if she could bring her self to understand I wanted to be burried in full with my fav silk undies and silk dress along with a change of cloths should I meet our lord on the other side..
Has anyone else thought of or has done a last will ???

Kimmie W
11-23-2006, 09:49 PM
I'm not sure it matters how we go out of this world as much as it does what we do while we're here.

NIKKITA
11-23-2006, 09:54 PM
Thats so true, but i do want to look good if and when..lol but until then i keep trying to bring up the fact about my true self to my mum by any means poss.

DAVIDA
11-23-2006, 10:20 PM
Jean has always said that she will put a pair of my favorite shooes on me if I die first. I just love her.

Alaceann
11-23-2006, 10:30 PM
I thought I was the only that thought about that. I've thought about what I would like to be buried in if just underclose or all done up,and lady like.

Kristen Kelly
11-24-2006, 12:09 AM
Dont want to think "How I'm going out one last time" funerals are for the living if I come out totally before I die, then dress me out in a nice dress, otherwise I would not push my wishes on my family

trannie T
11-24-2006, 12:19 AM
Reminds me of the song by the Austin Lounge Lizards "Can I Have Your Stuff When You're Dead?" Where I'm likely to wind up I'm going to need an asbestos bra and panty set.

Tina T
11-24-2006, 02:52 AM
I’m down for cremation after the knife merchants have finished taking any re-usable parts, so it does not make any difference to me one way or other. The me part of me will have long time left the building, and the rest is just housekeeping.

tgirlkari
11-24-2006, 09:07 AM
I am sure that some of my family members will not like it just as they dont like me crossdressing but both life and death are mine to do and will be done my way.
My wife knows of and has vowed to my final wishes.......I'm going out in style baby!!!!!!!!!!!!!!!!!!!!!!!!!

Scotty
11-24-2006, 09:51 AM
Interesting topic, and it's been on my mind a few days..

I want my family to dress me as they remember me, funerals are for the living to get closure with.

wendy
11-24-2006, 11:15 AM
nikkita, if you don't mind me asking, are you or will you be undergoing any treatment for your kidney disease (ie. dialysis, transplant) ? Did they do a biopsy ? Do you know what percentage of your kidney is still functioning ?

I ask this because I too was diagnosed with kidney disease over 3 years ago, and had to undergo treatment (I had roughly less than 10% functioning kidney, and when someone reaches that point, dialysis is the only option). Like yourself, when I was first diagnosed I also had an enlarged heart. I was also making frequent hospital visits, to see the nephorologist.

My doctor aggressively treated my blood pressure and put me on dialysis. After a while my heart returned to its normal size and my health stabilized (somewhat anyways). I too thought my life would be cut short, but here I am today.

A few months ago, my wife's coworker's husband was also diagnosed with kidney failure and had to be put on dialysis. He was also placed on the transplant list as well. to make a long story short, not too long after he was diagnosed with kidney disease he deveoper liver complications (his liver was scarred and failing) and was taken off the transplant list. The doctors gave him roughly 2 months to live, unfortunately i do not know how he is doing today. His wife took 2 months off from work to be with him, and so far she hasn't returned to work yet. But mind you, his complications was due to his liver failing, not from his kidney disease.

I know you're scared, when i was first diagnosed i was scared too. I didn't know what would happen and what would come next. but to sum it up, I survived the dialysis to receive a transplant. Just hang in there nikkita, find out what the doctors plan on doing and listen to what they have to say. and also find out if you'll be placed on the transplant list as well.

if you need to talk, PM me. I've been thru the ordeal, it is trying at times but do listen to what the nurses/doctors recommend.

good luck, and best wishes !:D :D

Nigella
11-24-2006, 05:29 PM
Nikkita

I trust that you have done all that you can and will continue to do so in respect of your ill health, I know it is corny, but the saying of "where's there's life there's hope" is true.

Back to topic

Yes I have a will and constantly keep it under review. As for how I leave this world, well why should I care, it will only be a carcass, I hope to live on as long as there are people who care for me and hold me in their hearts.

NIKKITA
11-24-2006, 07:15 PM
I want to thank you all for your input on this topic.
Wendy you wanted to know what my kidney function was, My last test showed one to be at 50% and the oher a bit beter. so at the momment i don't have to bother with dialisis. My Family however were all asked In tothe hospital to see who else had this disease as its hereditory and to see who is a match. However it seems that I am the oly one who had it which was strange according to the specialist.I go for scans every 3 months to make sure it does'nt spread to my other organs and blood tests to keep an eye on function. At the momment I have 5 injection of morphine to control the pain along with a load of blood pressure meds. I also have to go to the GP's every week to monitor my blood presure as it is not stable despite the meds.
But all in all i've come to terms with it. The last will and testement came about after my father had a bad stroke and then a few months later my mum had a mild one...And so given what I knew was a possability it got me thinking..
I do believe that organ doners should opt out rather than opt in and that monitored stem cell research shold be allowed but thats for a different forum...Thank for askig wendy, hope your well..Love nd hugs.Nikki :love:

Kimberly
11-24-2006, 07:24 PM
um... this may sound quite flippant, but why not tell her while you're all still alive?

I mean, share yourself with her... something that is beautiful, and ugly, and immensily important to yourself - rather than leaving an echo of an idea. If she can talk to you, then she'll be able to understand you so much better than reading "what you are" from a piece of paper.

Sierra Evon
11-24-2006, 08:10 PM
I dont like to think about it alot , but I know that I'm good with the Lord
and thats all the counts for me , I hope to be a cute pretty angle when my time is up in this world, I trust the Lord & he knows how I am.

Ellaine
11-24-2006, 08:12 PM
I want to be stuffed and mounted!

Perhaps in the local museum.

In taffeta of course!!

wendy
11-27-2006, 09:56 AM
I want to thank you all for your input on this topic.
Wendy you wanted to know what my kidney function was, My last test showed one to be at 50% and the oher a bit beter. so at the momment i don't have to bother with dialisis. My Family however were all asked In tothe hospital to see who else had this disease as its hereditory and to see who is a match. However it seems that I am the oly one who had it which was strange according to the specialist.I go for scans every 3 months to make sure it does'nt spread to my other organs and blood tests to keep an eye on function. At the momment I have 5 injection of morphine to control the pain along with a load of blood pressure meds. I also have to go to the GP's every week to monitor my blood presure as it is not stable despite the meds.
But all in all i've come to terms with it. The last will and testement came about after my father had a bad stroke and then a few months later my mum had a mild one...And so given what I knew was a possability it got me thinking..
I do believe that organ doners should opt out rather than opt in and that monitored stem cell research shold be allowed but thats for a different forum...Thank for askig wendy, hope your well..Love nd hugs.Nikki :love:

50% kidney function left isn't too bad, good to hear that you're on blood pressure meds. Overtime the doctor may decrease the dosage, or you may even lose a few meds too, at least that is what happened to me.

I remember when I was first diagnosed, there was a tonne of doctor's and hospital visits. once my condition 'stabilized', the doctor's visits reduced, and i stopped going to the hospital. In fact, i got to the point where i only saw the doctor every 3 months.

anyways, i hope the best for you, and i really hope you never go on dialysis, it is not the most fun thing to do.

and i agree with you, it should be like sweden (?) where you have to opt out of being a donor, or else by default you are automatically considered to be a potential donor.

i can't remember who told me this, but in regards to stem cell research, growing organs (ie. kidney) isn't the problem, it is making it stop growing is the issue.

best wishes nikkita !!:D :D

Penny
11-27-2006, 10:21 AM
Well, I want breast implants and my penis removed and mounted between them. This will signify the rollercoaster ride I have been on all of my life!(lol)

Paula Thomas
11-27-2006, 10:39 AM
Nikki - It was not clear where you are living, but, generally, YOUR request how/when/where, etc., to be buried will take second-place to the desires of your survivors.

You should have a Last Will and Testament (everyone should).

The special burial requests should be in a separate envelope attached thereto (assuming someone finds the will before the burial).

The best approach is to make your request known to the person(s) who get to make the decision (at least, let them know that there is an envelope with special burial instructions, and its location).

In some U.S. states, you can sign a document designating (legally) who gets to decide your burial plans (although you may get objection(s) from those who would usually make those decisions - including a court fight).