It's been awhile since I've been around, this is such a wonderful source for support and advice.
I'm been going through a lot of up and downs, I'm just very fortunate that I have a lot more up than downs.
I just got my surgery date a couple of weeks ago. I'm very happy about finally getting a date, but the date is a year away. Six months ago when I got the approval for my consultation they told me my date would be nine months to a year. So this adds six more months to what I thought it would be. And yes I know at least I have a date. But waiting is so hard.
You work so hard in therapy, you jump through all of their hops. Then it's hurry up and wait. I want my birth defect gone so bad.
I wake up each morning and get to be me, and that is such a wonderful thing. I take a shower and marvel over all the changes in my body, then I see my birth defect and my heart drops. The further I go on this journey the harder it is to wait.
How do you stay positive when you have to wait so long. I also have to fight for the other services that I need for my health provider. I love my life but sometimes it's just so much!
Janelle