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Thread: Deep Vein Thrombosis.

  1. #1
    Silver Member I Am Paula's Avatar
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    Deep Vein Thrombosis.

    Everyone on HRT has heard about, and maybe worried about it.
    This morning I was certain I was having a heart attack. Living in the boonies, I was not going to wait for an ambulance, and drove myself to the hospital. I got there running on about 10% consciousness.
    The doctors decided it wasn't my heart, but knew it was serious. A cat scan later, it was determined I have multiple blood clots in my lungs, having come loose from in my calves.
    HRT is pretty darn safe, and the risk of blood clots goes down considerably each year. After 4 years on estrogen, the odds just got the better of me.
    I will be on blood thinners all my life, and not 'right' for a long time. Serious stuff.
    As my girlfriend said 'You can reduce a risk, but you can't get rid of one'.
    At least I'm still this side of the lawn.
    Last edited by I Am Paula; 01-04-2017 at 09:13 PM.

  2. #2
    Member Mirya's Avatar
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    That's so scary! Thank goodness you were able to make it to the hospital without passing out.

    I have a Right Bundle Branch Block (RBBB) in my heart, so that may be a slight risk factor for me for Deep Vein Thrombosis. Paula, do you have any risk factors for DVT?

  3. #3
    Silver Member I Am Paula's Avatar
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    Thanks Mirya. I'm under care of an endo, and a GP. No risk except starting HRT at 53. The odds are very low after four years, but they are still 'odds'.

  4. #4
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    I am sorry you went through this Paula but glad you had your head about you. Everything is a risk, but it still sucks if the odds get you.

  5. #5
    Member jentay1367's Avatar
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    OMG Paula.....that's terrifying! Thank god you're alright. Keep us in the loop so we all know you're okay. Did you get any kind of warning that may help others in the same sitch?
    Anyway, get better soon and praise be the powers of whatever that you're still with us. So scary! Christ,.......... this isn't an easy path.
    "Everything you want is on the other side of fear" George Addair

  6. #6
    Member Tommie.'s Avatar
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    I am glad too Paula. I hope you get to feeling better soon and put a little distance in this in any case. Take care.
    Make Your Best Shot, With What You've Got !

  7. #7
    Silver Member Starling's Avatar
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    That's scary, Paula. It's a good thing you took immediate action to get help. I think some people would rather die than possibly embarrass themselves.

    Lallie
    Time for a change.

  8. #8
    Gold Member Rianna Humble's Avatar
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    Glad to hear that you are still with us!

    It may be a pain to be on blood thinners, but at least you get to spend more time with your girlfriend than if you hadn't taken them.

    Thanks for the update, take good care of yourself.
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  9. #9
    Call me Pam pamela7's Avatar
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    oh wow, so glad to hear you've survived. Thank you for the salutary warning. I have some veins going varicose on my left leg, now wondering if they need attention with priority. I hope you have a full recovery and that you can migrate off thinners sometime.
    Last edited by Nigella; 01-05-2017 at 12:03 PM. Reason: Please start a new thread with your question,
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  10. #10
    Questionable Nigella's Avatar
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    Wow Paula, glad you are "on this side of the lawn" (must remember that one).
    Everything becomes clearer when the PINK fog lifts
    I am Woman



  11. #11
    Transgender Person Pat (aka Jennie)'s Avatar
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    Wow. Glad you're OK. DVT is one of those things I'm intellectually aware of (endo mentions it every time I see her) but as I never experienced one nor knew anyone who had, never took to heart, so to speak. I kind of put them in the same category as getting hit by a meteor. They seem a little more real now.
    I am not a woman; I don't want to be a woman; I don't want to be mistaken for a woman.
    I am not a man; I don't want to be a man; I don't want to be mistaken for a man.
    I am a transgender person. And I'm still figuring out what that means.

  12. #12
    Member jentay1367's Avatar
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    Hi Paula, How do you take your E? Shot, patch or pill?
    "Everything you want is on the other side of fear" George Addair

  13. #13
    Questionable Nigella's Avatar
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    I'm not too sure if the delivery method is a factor Lisa. It is the oestrogen itself that is the primary factor here. A natal female on HRT has the increased risk (slightly) of developing DVT against her counterparts who do not take HRT.

    DVT risks are increased due to a number of factors and as Paula has indicated, HRT is pretty safe, you only need to look at the number of natal females use HRT
    Everything becomes clearer when the PINK fog lifts
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  14. #14
    Silver Member I Am Paula's Avatar
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    Thanks for al the best wishes and comments.
    I take estrogen by patch, and had no known risk factors.
    Now the interesting part. The ER said he had treated 100's of pulmonary embolisms. I was the first transwoman. He said estrogen may have been a factor, but they are very common in the cis population.
    So...did the estrogen cause this, or was I just one of many?

  15. #15
    Aspiring Member Acastina's Avatar
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    Quote Originally Posted by pamela7 View Post
    oh wow, so glad to hear you've survived. Thank you for the salutary warning. I have some veins going varicose on my left leg, now wondering if they need attention with priority. I hope you have a full recovery and that you can migrate off thinners sometime.
    I have pretty severe superficial varicose veins in my left leg, and the vein specialist I consulted with last year said that the superficials seldom develop or lead to DVT.

    They're just ugly, although firm hose really help.

  16. #16
    between worlds... steftoday's Avatar
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    so very glad you're ok after that scare. take care of yourself!
    And Iím a long long way from your Hill of Calvary
    And Iím a long way from where I was and where I need to be
    If there is a light you canít always see
    And there is a world we canít always be
    If there is a kiss I stole from your mouth
    And there is a light, donít let it go out

  17. #17
    Sigh, I always knew Christina Kay's Avatar
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    Glad to hear you woke up on the right side of the grass. Thoughts and prayers for a speedy recovery. Please keep us updated.
    Follow your path.. For only you can decide, which way to go.

  18. #18
    Senior Member Bria's Avatar
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    Paula, I'm glad to hear that you are recovering, I'll remember you in my prayers.

    Hugs, Bria

  19. #19
    Silver Member Starling's Avatar
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    Paula, can you continue HRT? I hope so.

    Lallie
    Time for a change.

  20. #20
    Silver Member I Am Paula's Avatar
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    Update-
    I'm feeling a little better today, and the awful pain in my chest is finally gone. I'm still winded by the slightest exertion, and always tired. Started meds yesterday- $500 for four weeks worth. A shock, but still a small price to pay considering the admitting M.D. called this a potentially fatal condition.
    The ER dr. and I had a good talk about estrogen, and DVT. He did not recommend stopping the estrogen. I'm going to give my endo a call, because I trust him with my life, and we'll see what he has to say.
    Thanks y'all for the kind words.

  21. #21
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    Paula, happy for you that you had the wisdom to go to the ER before it was too late, and you're doing ok now. I've seen what happens when someone didn't take DVT seriously. Best wishes on your recovery.

    -N
    Last edited by Nigella; 01-06-2017 at 11:59 AM. Reason: Not for the forum, you can use the VM or e-mail system

  22. #22
    Senior Member Laura912's Avatar
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    Paula, you did well with the quick reaction to your symptoms. For those who asked, superficial varicosities have no increased risk for clots. However, even in non-estrogen taking population, deep vein varicosities do increase the incidence. The proper diagnosis is deep vein thrombosis or DVT. Paula, you may benefit from a venous scan using some radiological or ultrasound procedure before continuing on with estrogen regardless of the route it is taken. Beat a path to your endocrinologist door.

    Laura MD

  23. #23
    Reality Check Krisi's Avatar
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    Glad you made it and are doing better. I remember one time telling my wife to drive me to the emergency room and then telling her to stop at the fire house so I could go in the ambulance. I figured if I got worse, they had the equipment to help me.

    On another occasion, my fingers stopped working right so I had my wife drive me to the emergency clinic. They determined that I had a TIA (mini stroke) and called an ambulance to drive me six blocks to the hospital. They wouldn't let my wife drive me. I take an aspirin a day now.

    Take care of yourself and see whatever doctors and take whatever tests you need. We only get one go around so make it count.

  24. #24
    Senior Member Leah Lynn's Avatar
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    Glad to hear you're doing better. Hang tough Girl!

    Hugs,
    Leah
    Be nice; It don't cost nothing.

  25. #25
    Silver Member I Am Paula's Avatar
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    Update- talked to my endo today. He said the chances of DVT after four years on HRT are infinitesimal. Same as a cis person.
    He said my embolisms were extensive, and threatening.
    He recommended halting estrogen completely, a thought that did not sit well with me. Then we agreed on 3 months without, then half dosage, and aspirin therapy.
    It was not a pleasant conversation, as aside from feminization, it was estrogen that kept me off the ledge. It's a long time later, we'll see how I fare without it.
    Either way, it was not a choice I ever wanted to make.

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